Life As We Know It: A Father, a Family, and an Exceptional Child - Rilegato

Berube, Michael

Rilegato

ISBN 10: 0679442235 ISBN 13: 9780679442233

Casa editrice: Pantheon Books, 1996

Riassunto

A moving, intensely personal chronicle of a father's struggle to realize the full potential of his Down syndrome son discusses his child's first four years of life, the stages of his development, and disability law, health care, education, and other key issues. 35,000 first printing. Tour.

Su questo libro

L'autore:

Michael Berube is a professor of English at the University of Illinois at Champaign-Urbana, and in 1994 was named University Scholar. He is the author of three other books, and has written for many academic journals a Village Voice.

Estratto. © Riproduzione autorizzata. Diritti riservati.:

We Americans argue about representation all the time: the representation of poor people in Congress, the representation of African-Americans in the wake of the O.J. trial, the representation of African-Americans who aren't represented by the best lawyers money can buy.

Representations matter. Our world, as William Wordsworth once put it, is that which our eyes and ears half create and half perceive; and it is because Wordsworth is right that we need to deliberate the question of how we will reprsent the range of human variation to ourselves. How we understand people with Down syndrome will become part of what it means to have Down syndrome.

In these pages I have tried to represent my son James to the best of my ability. Nothing I write will redraw a political district; nothing I write will change the chemical composition of Jamie's cells.

My job, for now, is to represent my son, to set his place at our collective table. But I know I am merely trying my best to prepare for the day he sets his own place. For I have no sweeter dream than to imagine that Jamie will someday be his own advocate, his own author, his own best representative.

Su questa edizione

• Editore: Pantheon Books
• Data di pubblicazione: 1996
• ISBN 10: 0679442235
• ISBN 13: 9780679442233
• Rilegatura: Copertina rigida
• Numero edizione: 1
• Numero di pagine: 284