Principles and Practice in Biobank Governance - Brossura

Stranger, Mark

Brossura

ISBN 10: 1138276936 ISBN 13: 9781138276932

Casa editrice: Routledge, 2016

Riassunto

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Su questo libro

Informazioni sull'autore

Jane Kaye is Wellcome Trust Fellow in Medical Law at the Ethox Centre, University of Oxford, UK Mark Stranger has taught sociology and worked as Senior Research Fellow and Executive Director at the Centre for Law and Genetics, University of Tasmania, Australia. He is the author of Surfing Life: Surface, Substructure and the Commodification of the Sublime.

Dettagli dell'edizione

• Editore: Routledge
• Data di pubblicazione: 2016
• Lingua: Inglese
• ISBN 10: 1138276936
• ISBN 13: 9781138276932
• Rilegatura: Copertina flessibile
• Numero edizione: 1
• Numero di pagine: 316
• Redattore: Kaye Jane
• Contatto del produttore: Taylor and Francis, GPSR Taylor and Francis; gpsr@taylorandfrancis.com; ; Taylor & Francis Verlag GmbH, Kaufingerstraße 24; München; 80331; Germania