Articoli correlati a The Life of Riley Living wtih Duchenne Muscular Dystrophy
Sinossi
About one out of every 5,000 boys has Duchenne, and about 20,000 babies worldwide are born with it each year. Duchenne mostly affects boys and reaches across all races and cultures. Parent Project Muscular Dystrophy (PPMD) estimates that there are about 15,000 young men, as well as a few young women, living with Duchenne today in the United States.
We were told Riley may need a wheelchair by the time he's 10 years old and be dead by 17. We needed to focus on accepting this reality.
It became abundantly clear that our family became stronger because of the hardships we encountered, but in the end, we truly found grace because we participated in Riley's life.
The Life of Riley: Living with Duchenne Muscular Dystrophy, Through A Mother's Eyes, encapsulates the extraordinary life of someone who has faced immense challenges at a young age. Riley never gave up or lost hope that a way would be found to keep him going. It has been 31 years in the making because it took this long for Riley to allow his story to be written.
It's a narrative of the family's collective journey as they grew alongside Riley and learned to understand his disease. It is nothing short of a miracle for one family with two brothers with Spinal Muscular Atrophy (SMA) who are still thriving. Greg is 62, and Dave is 59 years old, while their nephew, Riley, turned 31 on April 11, 2023, battling Duchenne Muscular Dystrophy (DMD).
Le informazioni nella sezione "Riassunto" possono far riferimento a edizioni diverse di questo titolo.
Risultati della ricerca per The Life of Riley Living wtih Duchenne Muscular Dystrophy
Foto dell'editore
The Life of Riley Living wtih Duchenne Muscular Dystrophy
Da: California Books, Miami, FL, U.S.A.
Valutazione del venditore 4 su 5 stelle
Condizione: New. Codice articolo I-9798990519688
Compra nuovo
EUR 22,04
Spedizione gratuita
Spedito in U.S.A.
Spedito in U.S.A.
Quantità: Più di 20 disponibili
Foto dell'editore
The Life of Riley Living wtih Duchenne Muscular Dystrophy
Da: PBShop.store US, Wood Dale, IL, U.S.A.
Valutazione del venditore 5 su 5 stelle
PAP. Condizione: New. New Book. Shipped from UK. Established seller since 2000. Codice articolo L2-9798990519688
Compra nuovo
EUR 25,15
Spedizione gratuita
Spedito in U.S.A.
Spedito in U.S.A.
Quantità: Più di 20 disponibili
Foto dell'editore
The Life of Riley Living wtih Duchenne Muscular Dystrophy
Da: PBShop.store UK, Fairford, GLOS, Regno Unito
Valutazione del venditore 5 su 5 stelle
PAP. Condizione: New. New Book. Shipped from UK. Established seller since 2000. Codice articolo L2-9798990519688
Compra nuovo
EUR 23,40
Spedizione EUR 4,86
Spedito da Regno Unito a U.S.A.
Spedito da Regno Unito a U.S.A.
Quantità: Più di 20 disponibili
Foto dell'editore
The Life of Riley Living wtih Duchenne Muscular Dystrophy
Da: Ria Christie Collections, Uxbridge, Regno Unito
Valutazione del venditore 5 su 5 stelle
Condizione: New. In. Codice articolo ria9798990519688_new
Compra nuovo
EUR 23,48
Spedizione EUR 14,00
Spedito da Regno Unito a U.S.A.
Spedito da Regno Unito a U.S.A.
Quantità: Più di 20 disponibili
Immagini fornite dal venditore
The Life of Riley Living wtih Duchenne Muscular Dystrophy
Print on DemandDa: AHA-BUCH GmbH, Einbeck, Germania
Valutazione del venditore 5 su 5 stelle
Taschenbuch. Condizione: Neu. nach der Bestellung gedruckt Neuware - Printed after ordering - About one out of every 5,000 boys has Duchenne, and about 20,000 babies worldwide are born with it each year. Duchenne mostly affects boys and reaches across all races and cultures. Parent Project Muscular Dystrophy (PPMD) estimates that there are about 15,000 young men, as well as a few young women, living with Duchenne today in the United States.We were told Riley may need a wheelchair by the time he's 10 years old and be dead by 17. We needed to focus on accepting this reality.It became abundantly clear that our family became stronger because of the hardships we encountered, but in the end, we truly found grace because we participated in Riley's life.The Life of Riley: Living with Duchenne Muscular Dystrophy, Through A Mother's Eyes, encapsulates the extraordinary life of someone who has faced immense challenges at a young age. Riley never gave up or lost hope that a way would be found to keep him going. It has been 31 years in the making because it took this long for Riley to allow his story to be written.It's a narrative of the family's collective journey as they grew alongside Riley and learned to understand his disease. It is nothing short of a miracle for one family with two brothers with Spinal Muscular Atrophy (SMA) who are still thriving. Greg is 62, and Dave is 59 years old, while their nephew, Riley, turned 31 on April 11, 2023, battling Duchenne Muscular Dystrophy (DMD). Codice articolo 9798990519688
Compra nuovo
EUR 29,35
Spedizione EUR 61,89
Spedito da Germania a U.S.A.
Spedito da Germania a U.S.A.
Quantità: 2 disponibili
Immagini fornite dal venditore
The Life of Riley Living wtih Duchenne Muscular Dystrophy
Print on DemandDa: preigu, Osnabrück, Germania
Valutazione del venditore 5 su 5 stelle
Taschenbuch. Condizione: Neu. The Life of Riley Living wtih Duchenne Muscular Dystrophy | Dianne DeMille (u. a.) | Taschenbuch | Englisch | 2024 | Dianne DeMille | EAN 9798990519688 | Verantwortliche Person für die EU: Libri GmbH, Europaallee 1, 36244 Bad Hersfeld, gpsr[at]libri[dot]de | Anbieter: preigu Print on Demand. Codice articolo 130098801
Compra nuovo
EUR 26,95
Spedizione EUR 70,00
Spedito da Germania a U.S.A.
Spedito da Germania a U.S.A.
Quantità: 5 disponibili