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  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479307254 / 9781479307258

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    Paperback. Condizione: new. Paperback. The Health Resources and Services Administration (HRSA), HIV/AIDS Bureau (HAB), Division of Service Systems (DSS), is pleased to offer this manual to Ryan White CARE Act Title II grantees and planning bodies. This publication replaces the Ryan White CARE Act Title II Manual that was distributed after the CARE Act was first reauthorized in 1996. On October 20, 2000 Public Law 106-345, reauthorized the Ryan White CARE Act for a second time, with provisions that affect all CARE Act programs. This manual has incorporated all new provisions affecting the Title II program. This manual is intended for the use of grantees, planning bodies and people living with HIV disease. However, we encourage you to share it with colleagues and peers involved in all aspects of the Ryan White Title I program in your area. The manual is designed to encourage local photocopying and distribution: each section has its own cover and chapters that deal with specific topics in depth. Each section, and chapters within them, can be copied and circulated as standalone documents. This manual contains nine sections. Section One, General Information, contains information that is useful to all readers, such as an overview of the CARE Act, CARE Act 2000 legislation, summary of changes to the Title II program, a description of DSS, and an overview of technical assistance for grantees and planning bodies. Section Two, Grants Administration, includes updated information on local administration of the CARE Act as well as guidance on Maintenance of Effort. Section Three, Reporting Requirements, is new for this manual and provides in-depth history and instructions on reports that HAB/DSS requires of grantees, including allocations reports; budgeting, contracting, and fiscal reports; Minority AIDS Initiative (MAI) reports; and the new CARE Act Data Report (CADR). Sample repot forms are included. Section Four, Policies, is a complete list of Program Policy Guidance and Policy Notes that have been issued by HAB and DSS since the inception of the CARE Act. Section Five, Title II Program Categories, outlines program areas under Title II, which are designed to give States flexibility in meeting their needs. Section Six, Planning Bodies, provides materials to help Title II planning entities function more effectively. Section Seven, Coordination, reviews the various ways that Title II can coordinate in planning, funding of services, and service delivery. Section Eight, Program Guidance, presents updated legislation, DSS expectations and implementation suggestions on issues such as: needs assessment, comprehensive planning, quality management, early intervention services, and priority setting and resource allocation. Section Nine, Chief Elected Official Guide, is new for this manual and gives the reader a better understanding of the relationship of the CEO to the grantee and planning bodies. It covers both Title I and Title II CEO duties. Section Ten contains definitions and acronyms and a listing of approved service category definitions. Section Eleven is a listing of HRSA/HAB offices and Title II grantees. Points to Remember: This manual provides a practical, "how to" guide for many aspects of the Title II program. While the hope is that the manual will be a stand alone document, there are other manuals and resources such as the: Title I Manual, CARE Act Needs Assessment Guide, Training Guide: Preparing Planning Body Members, and Self Assessment Modules, as well as other HRSA publications that will supplement the information presented here; A reference list is included at the end of each chapter in the manual. Another excellent source of information and guidance for grantees and planning councils is the HAB website that is continually updated (see ; There will be continual updates and inserts sent to the Title II CARE Act community to keep your manuals as u Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479295817 / 9781479295814

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    Paperback. Condizione: new. Paperback. On February 23, 2009, a consultation meeting was held to examine the use of peers in HIV interdisciplinary care settings. The meeting was convened by the U.S. Department of Health and Human Services (HHS), Health Resources and Services Administration (HRSA), HIVAIDS Bureau (HAB). Participants included HRSA representatives, Ryan White HIV/AIDS Program grantees, researchers, technical assistance providers, health care professionals, program managers and HIV positive peers. Participants heard about the ways in which peers were being used in the fields of HIV, cancer and diabetes to facilitate access to care, treatment and health-related services. The purpose of the meeting, explained Steven Young, HAB's Director of Training and Technical Assistance, was to gain greater insight into the benefits and challenges of having peers on health care teams, to identify the major components of an ideal peer program, and to make recommendations regarding ways in which peer interventions could be funded and sustained within HIV systems of care. Young explained that in the Ryan White HIV/AIDS Program, peers are HIV positive individuals who share identifying characteristics with individuals or population groups receiving care or services. Peers and clients share similar experiences and challenges related to class, race, age, gender, language, culture and recovery from substance abuse and/or trauma. These common characteristics often provide peers with deep insight into the feelings and behaviors of clients, and help them forge both personal credibility and trusting relationship with clients. In the field, said Young, peers are also called coaches, community health workers and patient navigators, among other titles. HAB's particular interest is in examining the role of peers on interdisciplinary health care teams, whose focus in the Ryan White HIV/AIDS Program is to engage and retain clients in high quality, HIV care. Young emphasized the important role that peers (also called consumers) have played in the Ryan White HIV/AIDS Program since its inception. Peers participate in program planning activities, serve as grant reviewers, participate on program advisory committees and boards, and hold positions as volunteers and staff at local health clinics and community-based organizations (CBOs). They serve as faculty of the AIDS Education and Training Centers program. HAB cooperative agreements and grants have supported leadership development for peers to promote their involvement in HIV/AIDS programs. "On an individual level, we have heard from peers that involvement in our programs helps them feel less isolated and gives them an increased sense of purpose," said Young. He added that peers can help improve HIV health care delivery and assessment of client needs, as well as reduce cultural and linguistic barriers, and stigma. Despite widespread acknowledgement within Ryan White that peers play a beneficial role, their function has not been well documented or codified. As a result, HAB is seeking guidance on: Training and support needs of peers; Ideal roles for peers (i.e., staff, volunteers, etc); Financial support for the peer role (grants, reimbursement, etc.); Identification of reasonable client and organizational outcomes related to the use of peers; and Suggestions on how peers might be integrated into specific, legislatively identified core services, such as medical case management and adherence support. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. …

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479296112 / 9781479296118

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    Paperback. Condizione: new. Paperback. The Ryan White HIV/AIDS Program was borne of a movement that began with the onset of the AIDS epidemic in America. First by the tens, then by the hundreds, then by the thousands, brave and committed people from all walks of life made a decision to get involved. Some were public health officials; others were activists. Some were community leaders, and others-at least until that time-were citizens quietly living their lives. In this sixth edition of the U.S. Department of Health and Human Services (HHS) Health Resources and Services Administration (HRSA) HIV/AIDS Bureau (HAB) Progress Report, we celebrate the legacy of those first responders. We also celebrate the incredible journey we have taken since 1990, when the first Ryan White Comprehensive AIDS Resources Emergency (CARE) Act was passed into law. Who could have imagined in those early years that we would one day have treatments powerful enough to forestall the progression of HIV/AIDS? Who could have known that we would touch so many lives? This year alone, through scores of grantees and providers* in cities and towns across America, the Ryan White HIV/ AIDS Program will serve well over half a million people. We continue to face hurdles in our fight against the epidemic, but we have made enormous progress. Highlights from this year include the following: At $2.29 billion, FY 2010 appropriations for the Program were the largest in Program history; Our AIDS Education and Training Centers (AETCs) conducted more than 18,000 trainings; Under the AIDS Drug Assistance Program (ADAP), we distributed medications to more than 175,000 clients; We treated the people most disproportionately affected by HIV: 73 percent of our clients were racial and ethnic minorities, and 88 percent of our clients had no private health insurance; We conducted research on innovative, replicable models of HIV care to reduce health disparities in women of color, improve access to oral health care, establish linkages between jail settings and HIV primary care, and expand health information technology and electronic medical systems; We have been involved in the Healthy People 2010 broad-based national collaborative to meet the Nation's most pressing health needs; We continue to set the standard for HIV/AIDS care using well-respected performance measures. This response to HIV/AIDS constitutes nothing less than a modern public health miracle. . . and within it lie other miracles, too-like that of an HIV-positive person living into old age, or the promising future that unfolds before the eyes of an HIV-positive adolescent. In this publication, you will read about many of the milestones we have encountered in our 20-year journey and the many qualities that make our team successful. We embarked on a quest that many would not. We stepped up to the plate when others stepped away. And today we constitute a powerful and cohesive force seldom seen in combating a single disease. Our rewards lie in victory after victory over isolation and disease and in the improved lives of our clients. It has been an amazing and empowering journey, and it is not over. We are trained. We are committed. We are full of resolve. And we will not stop. In this Progress Report, we remember and we honor the determination of those first responders and of Ryan White himself. It was the determination to go the distance for people living with HIV/AIDS, whatever it took and whatever the cost. That determination has never been more alive than it is today. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. …

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479307556 / 9781479307555

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    Paperback. Condizione: new. Paperback. This document is provided as an information resource for physicians and other health care professionals to guide them in the appropriate treatment of patients with HIV/AIDS. Recommendations for care and treatment change rapidly, and opinions can be controversial; therefore, physicians and other health care professionals are encouraged to consult other sources, especially manufacturers' package inserts, and confirm the information contained in these tables. The individual physician or other health care professional should use his/her best medical judgment in determining appropriate patient care or treatment because no single reference or service can take the place of medical training, education, and experience. Determination of appropriate treatment is the responsibility of the treating physician This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479296082 / 9781479296088

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    Paperback. Condizione: new. Paperback. This book uses the 2007 National Survey of Children's Health (NSCH) to report on recent findings on children with special health care needs (CSHCN) in the United States. The NSCH provides a unique view of CSHCN in the context of where they live, play and go to school. It also allows comparisons to children without special health care needs. Children with special health care needs (CSHCN) are defined in the National Survey of Children's Health as those who have one or more chronic physical, developmental, behavioral or emotional conditions for which they require an above routine type or amount of health and related services. Based on this definition of CSHCN, as set forth by the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (MCHB), recent data show that 14-19 percent of children in the United States have a special health care need, representing over 1 in 5 households with children. The 2007 NSCH is a national, parent-reported telephone survey sponsored with funding and direction from the Health Resources and Services Administration's Maternal and Child Health Bureau and conducted by the Centers for Disease Control and Prevention's National Center for Health Statistics. The survey, also conducted in 2003 and again in 2011, provides a consistent source of data on the health, community and family related experiences of children with and without special health care needs in the nation and in each state. The 2007 version of the NSCH represents the most recent national and state representative data about CSHCN and children without special health care needs (non-CSHCN). All of the estimates presented here are based on parents' reports, and only those differences that are statistically significant are included. A technical description of the survey methodology is available at Children with special health care needs come from all racial and ethnic groups, ages, and family income levels. CSHCN encompass a wide variety of health conditions, with most children having more than one condition. All CSHCN require special health care services for one or more ongoing health conditions. However, these children naturally vary in their functional abilities. Nearly all CSHCN experience some type of functional difficulty. Yet, many are nonetheless able to participate in daily activities like other children their age, while others are significantly affected by their conditions. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479296023 / 9781479296026

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    Paperback. Condizione: new. Paperback. "Making a Difference!" has been developed to help community members to become involved in local decision making that will determine what HIV services are available in their community. While this Consumer Digest may be helpful to many types of community members, its primary purpose is to support persons living with HIV disease to be effective participants on Ryan White planning bodies. Whether you already are involved in your planning body process or wish to learn more before Making the Commitment! to get involved, Making a Difference! can help you. The CARE Act (Comprehensive AIDS Resources Emergency) is the Federal law that provides money to cities, States, community-based organizations and other types of organizations to provide HIV services. The CARE Act specifically requires that HIV services planning bodies include persons living with HIV disease. These Title I planning councils and Title II planning bodies and consortia (collectively referred to as Ryan White planning bodies throughout this document) have a big impact on determining the types of HIV services - and which specific programs - are available in a community. In recent years, Congress has appropriated (or designated) funding in the range of $2 billion per year to support HIV health services through the CARE Act. Much of this money is distributed to States and local governments that rely on planning bodies to help them identify who is affected by the HIV epidemic, set priorities for the types of HIV services that are needed, and determine how best to allocate funding among multiple priorities. Persons living with HIV disease (PLWH) are critical to the success of these planning processes because they bring a perspective that is different from other members and know firsthand what services are needed. They also can help make sure that different groups of PLWH are included in the process and that their service needs are not overlooked. The Health Resources and Services Administration's (HRSA) HIV/AIDS Bureau (HAB) is the Federal agency responsible for administering the CARE Act. HAB produced this Consumer Digest with the assistance of PLWH members of planning bodies and PLWH trainers at national HIV/AIDS organizations. This document provides new information regarding the CARE Act Amendments of 2000 related to PLWH involvement, and draws upon other publications and materials useful to PLWH on (or considering serving on) a planning body. This digest is intended to provide you with information and tools to help you Make a Difference by serving your community as an active and informed member of a Ryan White planning body. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. …

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479295876 / 9781479295876

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    Paperback. Condizione: new. Paperback. People with HIV/AIDS can live longer, healthier lives because of advances in treatment of HIV infection. However, longer lives are associated with increased prevalence of 1) adverse effects of HIV infection, 2) adverse effects of the drugs used to treat HIV, and 3) concurrent medical conditions that would occur in the absence of HIV. These long-term complications have put HIV infection in the realm of chronic diseases rather than of infectious diseases, which usually respond to short-term clinical interventions. Effective management of chronic diseases in the primary care setting requires the coordination of interventions that occur at the level of the clinical services, the community supports for those clinical services, and the individual patient. While clinical services begin in the primary care clinic, community supports are needed, and the patient must be engaged to enhance self-management. The coordinated interventions together contribute to the desired clinical outcomes. The Chronic Care Model, which is used in the design and quality improvement activities of clinical services, conceptualizes how these factors impact the clinical outcome of chronic disease management. This book addresses several important aspects of HIV/AIDS care and treatment in a concise, accessible format; it is not meant to be a comprehensive reference book. Recommended references and citations are provided for the reader to be able to access in-depth information on topics that are particularly important and/or controversial. Appropriate use of antiretroviral drugs, treatment of opportunistic infections, symptom management, treatment of concurrent medical conditions, and other specific interventions to treat HIV disease and its complications are addressed. The format of this guide is designed to provide practical information for the common questions that arise in the care of patients with HIV infection. Recognizing the broader array of best practices that contribute to effective clinical outcomes among patients with a complex array of service needs, the authors also address patient evaluation, adherence, mental health, substance abuse, overall clinic management, and other factors that lead to improved patient outcomes according to the Chronic Care Model. Last, because the authors recognize the challenges of maintaining clinical practices in the face of rapidly changing and ever more complex treatment interventions, a chapter on sources for updated and in-depth clinical information is provided. Pediatric HIV/AIDS treatment is not addressed in this book. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. …

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479296414 / 9781479296415

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    Paperback. Condizione: new. Paperback. This document is to help the CARE Act1 community conduct needs assessments so that they can better plan on how to use CARE Act resources to fill gaps in care. It describes the process of needs assessment and provides "how-to" information about tasks ranging from developing an epidemiologic profile to estimating the need for services. The Guide provides: Legislative requirements and HIV/AIDS Bureau (HAB) expectations for each CARE Act title; Types of needs assessment information; Steps in conducting a comprehensive needs assessment; Practical guidance on how to: Prepare an epidemiologic profile; Collect and use surrogate markers for HIV/AIDS, such as co-morbidity data; Collect information from people living with HIV disease (PLWH) and other community representatives through focus groups, surveys, interviews, and community forums; Prepare a resource inventory; Conduct an assessment of provider capacity/capability, and Assess service needs. Ways to use needs assessment results in decision making; The experiences of CARE Act Titles I, II, III, and IV grantees nationwide, and; Information on special HAB needs assessment initiatives (i.e., preparing a joint epidemiologic profile with an HIV prevention community planning body, developing a framework for estimating unmet need). The Needs Assessment Guide was designed for use by all CARE Act titles and can provide a common approach to needs assessment that facilitates cross-title collaboration. Input on its content was provided by HAB staff and a Field Review Group. Title I and Title II needs assessments typically involve planning bodies-Title I HIV services planning councils and Title II regional consortia or Statewide planning entities. Therefore, the roles of planning bodies are described throughout. For Title III or Title IV, the planning body may be an agency's planning committee or executive committee. Many programs also establish advisory bodies that include community and PLWH participation-or there may be no planning body involvement. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    147930719X / 9781479307197

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    Paperback. Condizione: new. Paperback. State ADAPs function as important components of Title II service systems, yet most State ADAPs are also large and complex enough to merit their own staff resources. As of January 2002, 78 percent of the States have separate individuals (or groups of individuals) administering the Title II program and the State ADAP. Given the unique role of ADAPs in the Ryan White service delivery system, HRSA prepared the ADAP Manual to assist ADAPs with their distinct issues and requirements. The ADAP Manual is meant to complement the information provided in the Ryan White CARE Act Title II Manual. ADAP-specific information from the Title II Manual has been reproduced and, in most cases, has been expanded upon and enhanced. Other areas, such as the Section 340B Drug Discount Program, are unique to the ADAP Manual. All of the information contained in this manual is designed to assist State ADAP coordinators, Title II directors, and others involved with improving access to HIV medications for low-income individuals. Some chapters of the ADAP Manual are taken directly from the Title II Manual. For a comprehensive understanding of the Title II program, however, the two manuals should be used together. Each chapter begins with a chapter summary for quick reference. In addition, each chapter includes a list of sources used and a reference list for further information. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…

  • Lingua: Inglese

    Editore: Createspace Independent Publishing Platform, 2012

    1479296260 / 9781479296262

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    Paperback. Condizione: new. Paperback. This Training Guide was developed to assist Title I HIV planning councils and Title II care consortia in ensuring that all members have the information and skills for full participation in Ryan White Comprehensive AIDS Resources Emergency (CARE) Act planning and implementation activities, with special emphasis on PLWH members . Successful implementation of the CARE Act depends upon the work of planning bodies in communities throughout the nation, and requires that members be diverse, active, and well informed. PLWH involvement in such planning bodies is both a legislative requirement and a practical necessity . The CARE Act, enacted in 1990 and reauthorized in 1996, requires planning councils and consortia to include members from affected communities, including people living with HIV/AIDS (PLWHs). The Division of HIV Services (DHS), which administers Title I and Title II of the CARE Act, believes that effective programs and services must be developed based on the input and perspectives of those for whom the services are intended. The Training Guide was initiated to address the need for orientation and training for planning body members who were people living with HIV disease . A consultant to DHS developed the initial outline. Subsequently, DHS staff and participants in the third Community Discussion Group meeting in October 1995 reviewed, revised, and expanded it. The resulting content outline became the basis for this guide, prepared by MOSAICA: The Center for Nonprofit Development and Pluralism through an interactive process with the PLWH Response Committee of DHS and with John Snow, Inc., the Ryan White Technical Assistance Contractor. Following review of the draft guide, DHS decided that a Training Guide was needed not just for PLWHs but for all planning body members. The guide therefore provides information that can be used for providing orientation and ongoing training to all planning body members, including people living with HIV disease. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…