The sturge weber foundation (40 risultati)

Hardcover. Condizione: Very Good. Hardbound. Pages unmarked, modest wear.

Trade Paperback. Condizione: Good. Binding: Paperback - Condition: Very Good/like new - Condition notes: Minimal signs of wear /all pages intact /tight spine /no creasing on spine /no markings inside (pen/pencil/highlighter).

Paperback. Condizione: New.

Paperback. Condizione: New.

Condizione: As New. Unread book in perfect condition.

Condizione: New.

Paperback. Condizione: New.

Condizione: New.

Paperback. Condizione: New.

Condizione: good. Good condition. A copy that has been read but remains in clean condition. All pages are intact and the cover is intact. The spine and cover may show signs of wear. Pages can include limited notes and highlighting, and the copy can include "From the library of" labels or previous owner inscriptions. 100% GUARANTEE! Shipped with delivery confirmation. If you're not satisfied with purchase please just return it.…

Condizione: New.

Condizione: As New. Unread book in perfect condition.

Paperback. Condizione: Brand New. 216 pages. 9.00x6.00x0.59 inches. In Stock.

Condizione: New.

Hardback. Condizione: New. 2nd Revised ed.

Condizione: As New. Unread book in perfect condition.

Taschenbuch. Condizione: Neu. Neuware - Karen Fisher Ball is The Warrior Mama. She's made it her life's mission to encourage research and -discover treatments for Sturge-Weber syndrome (SWS), a vascular malformation neurocutaneous disorder that is characterized by a congenital facial birthmark, glaucoma, and neurological abnormalities.When Karen's daughter was diagnosed at birth with SWS, few resources were available for families and caregivers. No support groups, guid Elektronisches Buch, websites, or even brochures on the complexities of this unique condi-tion. A guide to living with SWS simply did not exist. In fact, many medical prac-titioners had no experience with diagnosing or treating children with SWS.Inspired by faith and driven by determination, Karen blazed her own trail and created the Sturge-Weber Foundation to battle SWS. She embarked on a fundraising and research journey through the medical community and the pharmaceutical industry that has helped people worldwide.In Part I of The Warrior Mama, Karen traces the source of her strength through her family's history in the Old West - Butte and Helena, Montana. In Part II we hear the voices of other Warrior Mamas and their tales of battling SWS in their children. Part III introduces the Sturge-Weber Foundation and its early efforts to enlist the National Institutes of Health in search of solutions. Finally, Part IV delivers wisdom and observations from Karen's blog.There is sadness and joy in these stories, and plenty of hope - hope for anyone who feels they are facing an impossible situation with the health of a loved one.Part autobiography and part inspirational guide, The Warrior Mama captures the essence and energy that Karen and her fellow warriors have drawn upon to build an extended family of support for everyone affected by Sturge-Weber syndrome and a Port Wine Birthmark. …

Condizione: New.

Condizione: As New. Unread book in perfect condition.

Paperback. Condizione: New.

Paperback. Condizione: New.

Paperback. Condizione: New.

Paperback. Condizione: New.

Condizione: New. KlappentextrnrnSturge-Weber syndrome is an enigmatic disorder, seldom difficult to diagnose but often difficult to treat. This book consolidates what is known about the Sturge-Weber syndrome in the hope that this information will be useful in th.

Buch. Condizione: Neu. Neuware - Sturge-Weber syndrome is an enigmatic disorder, seldom difficult to diagnose but often difficult to treat. This book consolidates what is known about the Sturge-Weber syndrome in the hope that this information will be useful in the care of patients and serve as a stimulus to encourage research on some of the remaining questions about the syndrome. This book is the 2nd Edition. The 1st Edition was published in June 1999, ISBN-10: 0967048400; ISBN 13: 978-0967048406.…

Hardback. Condizione: New. 2nd Revised ed.

hardcover. Condizione: New. NEW. SHIPS FROM MULTIPLE LOCATIONS. book.

PAP. Condizione: New. New Book. Delivered from our UK warehouse in 4 to 14 business days. THIS BOOK IS PRINTED ON DEMAND. Established seller since 2000.

PAP. Condizione: New. New Book. Delivered from our UK warehouse in 4 to 14 business days. THIS BOOK IS PRINTED ON DEMAND. Established seller since 2000.

PAP. Condizione: New. New Book. Delivered from our UK warehouse in 4 to 14 business days. THIS BOOK IS PRINTED ON DEMAND. Established seller since 2000.