Confronting the complex issues associated with Prader-Willi syndrome puts us in mind of a thousand-piece puzzle where, at first glance, all the parts look much alike but are, in fact, very different. We were pleased that the publication of the initial book in 1988 clarified some of the more confusing aspects of this syndrome and that it became a comprehensive resource for information and enhancement of services. This second volume reflects the considerable advances in research, case finding, and multi disciplinary management that have evolved. The Prader-Willi Syndrome Association (USA), with its membership of dedicated parents and professionals and its network of state chapters and allied organizations, is pleased to support this second edition. Our sincere thanks to Louise R. Greenswag and Randell C. Alexander for their significant contribution to transforming more pieces of the puzzle into a more complete picture. THE OFFICERS AND BOARD OF DIRECTORS PRADER-WILLI SYNDROME ASSOCIATION (USA) IX Acknowledgments This second edition is the result of recognition by the Prader-Willi Syndrome Association (USA) of significant advances in genetic research, the development of diagnostic criteria, and the expanding horizons of management of this unusual birth defect. We are deeply indebted to this exceptional organization of parents and professionals for its generous financial support in the preparation and publication of the text and for its personal support and encouragement.
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From the reviews of the third edition:
"The third edition is a welcome update which includes recent developments in the treatment of PWS ... . The layout and illustrations are excellent. ... will provide a wealth of information for the geneticist and it will serve as an excellent reference for any healthcare professional, family member or teacher." (Ruth Newbury-Ecob, Human Genetics, Vol. 124, October, 2008)
"This is an excellent ... book that cover every aspect and organ system involved in Prader Willi syndrome. ... This is an excellent resource for anyone who wants to know more about this syndrome. The prospective audience includes parents, practitioners, and physicians ... . This is an essential reference for anyone taking care of a person with Prader-Willi syndrome, whether physician, practitioner, teacher, or parent. It gives excellent and detailed information describing the disease and the problems associated with it." (Pinar Bulut, Doody’s Review Service, March, 2009)
Book by Greenswag Louise R
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