Nicola batty (4 risultati)
The Legacy of Marie Schlau: a collective novel to cure Friedreich's Ataxia
Babel, A. F.; Batty, Nicola; Blasco, Maria; Hansen, Jamie Leigh; Plaza, Diego; Plaza, Eva; Tolosana, Pilar A.; Stant, Rebecca; Allen, Sarah; Casas, M. Luz G.
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Da: California Books, Miami, FL, U.S.A.California Books
Contatta il venditoreVenditore con 5 stelleCondizione: Nuovo
EUR 25,72
Spedizione gratuitaSpedito in U.S.A.Quantità: Più di 20 disponibili
Condizione: New. Print on Demand.
El Legado de Marie Schlau: Una novela colectiva para curar la Ataxia de Friedreich (Spanish Edition)
Babel, A F; Batty, Nicola; Blasco, Maria; Hansen, Jamie Leigh; Casas, M. Luz G; Plaza, Diego; Plaza, Eva; Stant, Rebecca; Tolosana, Pilar A; Allen, Sarah
Lingua: Spagnolo
Editore: CreateSpace Independent Publishing Platform, 2017
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Da: California Books, Miami, FL, U.S.A.California Books
Contatta il venditoreVenditore con 5 stelleCondizione: Nuovo
EUR 25,72
Spedizione gratuitaSpedito in U.S.A.Quantità: Più di 20 disponibili
Condizione: New. Print on Demand.
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Da: CitiRetail, Stevenage, Regno UnitoCitiRetail
Contatta il venditoreVenditore con 5 stelleCondizione: Nuovo
EUR 37,75
EUR 43,06 spedizioneSpedito da Regno Unito a U.S.A.Quantità: 1 disponibili
Paperback. Condizione: new. Paperback. **** All proceeds from each book goes directly to research to cure Friedreich's Ataxia **** When the spirit of Marie Schlau, a German Jewish girl born in Frankfurt in 1830, awakens in her grave in the cemetery of Wurzburg, she is determined to unravel the unanswered questions which have bra…nded her existence, casting an ominous shadow upon her descendants. An enigmatic illness marks her life and those of her bloodline, their personal destinies dogged by mysterious diagnoses, accidents, disappearances, murder, love, tenderness, greed, lies and death . Marie relives those confusing years of her life while watching over her great-great grandson Ron Mc Klyn, as he discovers secrets that have remained hidden for more than a century. *** Submerge yourself into this passionate and emotional story that will not leave you wanting. Innovative, original, creative and united . Collaborating Organizations: - Navarra rare diseases group GERNA - FEDER Foundation for the Research of Rare Diseases The pseudonym A.F. BABEL represents the 17 authors of this collective novel: Maria Blasco (Spain), Jamie Leigh Hansen (USA), Diego Plaza (Spain), Eva Plaza (Spain), Rebecca Stant (Australia), Pilar A. Tolosana (Spain), Marguerite Black (South Africa), M. Luz G. Casas (Spain), Maria Pino Brumberg (Spain), Ramon Roldan (Spain), Nicola Batty (UK), Susan A. Carter (USA), Fatima DOliveira (Portugal), Kristina Zarrantz (Spain), Inma Priego (Spain), Sarah Allen (UK), Claudia Parada (Mexico). 13 of the 17 authors of this collective novel suffer from Friedreich's ataxia, a neurodegenerative illness that currently has no cure. This illness attacks children and young adults, crippling them and shortening their lives. This degeneration causes uncoordinated movements, scoliosis, dysphagia, dysarthria, and in many cases diabetes and serious heart problems. in a fairly short time, they are forced to use a wheelchair and to become dependent on the care of their families or third parties. Only their intellect and creative talents are left unaffected. BabelFAmily is a non-profit association that takes a pro-active stance in the fight against Friedreich's ataxia. Their ongoing, invaluable support brought this project light. The Legacy of Marie Schlau currently exists in Spanish and is being translated into other languages by a volunteer team of professional translators. All proceeds from the sale of this novel, in any language and any format, will be devoted to curing Friedreich's ataxia. More information on the web: Mail address: Website: This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.
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Da: THE SAINT BOOKSTORE, Southport, Regno UnitoTHE SAINT BOOKSTORE
Contatta il venditoreVenditore con 5 stelleCondizione: Nuovo
EUR 73,85
EUR 14,28 spedizioneSpedito da Regno Unito a U.S.A.Quantità: Più di 20 disponibili
Paperback / softback. Condizione: New. This item is printed on demand. New copy - Usually dispatched within 5-9 working days.
